I participate in a lot of charity walks for all sorts of illnesses and conditions. I have done everything from being a walking participant, to donating money to even being a team captain. I love to support charities and conditions of all kinds. But seriously, dude, where's my walk? That's what I feel like asking society. IC needs a charity walk. We need awareness and we need it yesterday.
I don't think many people realize how serious IC can be. Women are losing their jobs, their ability to walk correctly, the ability to socialize and the ability to eat everyday food because of this disease. It is not okay that this condition has no awareness. I think the healthy looking exterior of many IC patients leads to a lack of compassion and charity from the outside world. If a non-IC patient could have an IC bladder for even a few hours they would be screaming for a cure.
We need to speak out and demand awareness. Women have suffered in silence long enough due to this silent beast we call IC. It took long enough for the medical community to accept the disease, but now that they have the public needs to know about this. Without awareness we will never find a cure. Without awareness there are women every day who are being misdiagnosed or ignored. I think a national walk for a cure for IC would be a big step in the right direction.
Do you have IC? Do you have a friend or family member who suffers from IC? What kind of awareness would you like to see?
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