If you are a chronic pain patient or a family member of someone suffering from chronic pain, it is important to be as educated as possible about chronic pain. Understanding the conditions themselves and how to treat them is very important. It is also vital to remember that pain doesn't make a person. There are many emotional aspects to living with chronic pain. Never forget that your family member or friend is still a person just like you with career aspirations, education goals, cravings for social interaction etc.
If you are still familiarizing yourself with chronic pain or are a long-time sufferer just looking for some new places on the web to hang, here are a few websites that I recommend. Enjoy!
The Invisible Disabilities Association gives a voice to people who are suffering in silence. It is important that the world understands that just because you can't see a scar, cast, rash or other outward signs that someone is suffering, doesn't mean that their pain isn't real. The site promotes awareness through events, books and celebrity promotions. They also have links to great articles on how to deal with chronic pain issues in relation to your love life, work place, family life and more.
American Pain Foundation
Another recent find, this site supports chronic pain patients of all kinds. I was happily surprised to see that the site even has its own Vulvodynia section. Vulvodynia seems to rarely get any attention. This foundation is on a nation wide crusade to help chronic pain patients. Check it out today to see how you can get involved.
The IC network is a great place to read and learn about chronic bladder and pelvic pain. The website is filled with tons of information about symptoms, treatments, doctors and more. One of the most helpful parts of the website is the large forum with lots of educated and compassionate women who can answer questions and give tips about bladder pain. When you feel like there is no one out there that can understand your situation, the women on the IC network can be there for you. There is also a great store that sells cushions, heat packs, acid free products and more.
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| It's difficult to explain pain that no one else can see. |
When I came across this website, it brought happy tears to my eyes. I felt like I could relate personally to the posts written by the website's founder. The creative mind behind this website is a lupus patient, but her wisdom and words can be inspirational to anyone with any type of chronic pain or illness. My favorite part of the website is the "spoon theory" section. Find out how one woman used spoons to explain her battle with chronic pain to a friend. The spoonie movement has since taken off and has become popular on social networking websites.
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